A lot of people don't realize the effects Blount's Disease may have on a child. There is no prognosis on the possibility of Blounts coming back after surgery. Sadly, This condition is basically a " see how it goes trial." There isn't enough research to support proper treatment and each case is handled differently according to each doctors plan. So much medical trauma can cause a child to undergo anxiety and depression, and bullying in school for the way they walk has also been a factor from having this condition. Some are able to be treated with bracing while some have to undergo several operations within their childhood. Who's to say how this condition will impact their adult life because their isn't enough research to support it.
Having a rare disease makes the individual and the family much stronger as a person and makes them appreciate more in life. People may say "I don't know how you do it," but did we really have choice? No, we just know we will never give up. A disease may be rare, but the awareness shouldn't be.