Wednesday, March 22, 2017
Blount's Disease Awareness Day
March 26, 2017 marks Blount's Disease Awareness Day in the State of Kansas. Governor Brownback proclaimed this day to help raise awareness for those battling this condition. Blount's Disease is a rare bone disease that affects under 200,000 people in the United States. The cause is unknown and there is no supporting foundation for this condition.
At 18 months old Anneliese was diagnosed with Blount's Disease. She has had multiple operations with more in the future. Anneliese runs a project called Bottlecaps4Blounts and makes custom made bottle caps for those with Blount's or other conditions.
Rare Disease Day at the State Capitol
We recently attended the Kansas State Capitol for Rare Disease Day and had the opportunity to meet Congressman Yoder and Lt. Governor Colyer and shared a little about Blount's Disease. It was a great experience to help raise awareness for others and represent the condition.
How Can You Help Support?
This Sunday March 26th, lets help recognize Blount's Disease by wearing the color Blue. Take a selfie, or group picture and post your image to any social media site using the hashtag #blountsdisease. Together we can help make a difference and raise awareness. The event will be hosted all day, worldwide. For more information you can check out the event on Facebook.
"A disease may be rare, but the awareness shouldn't be."